Booboo wheel crash no survivors
Is... Is this satire
I'm scared
Sooo… turns out this video I shared yesterday was actually bait. Sorry. But in my defense I’ve seen things exactly like this posted for real.
his also means that asking disabled people about their disability, when they are not known to you or especially if its a personal boundary for the disabled person, is rude. Obviously there is nuance and everyone is different, some may be happy to talk while others may find it triggering. Asking complete strangers is rude.
ID:
Line art illustration of a man, with scarring covering majority of his face, and his arms, as well as an upper erm amputation on the left and finger amputations on the right hand. Text reads: Disability Pride Month, You are entirely within your right to refuse to answer strangers who ask invasive medical questions. You are not rude for refusing to answer, they are rude for asking. You're entitled to your privacy. End of ID.
happy disability pride month to people whose main mobility aid is an adjustable bed
people who need to lie flat all the time
people who only sit up to eat or use the bathroom
people who are too unwell to be transported anywhere, even within their own home
people who structure their whole week around recovering from a single planned trip out of bed
people who are technically wheelchair users because they can’t walk, but can’t tolerate being upright for long enough to use a chair either
people who can’t adapt activities to be accesible, and instead have to just miss out on 90% of life
i see you and i respect you and love you. if you feel limited, confined, sick, or bound to your bed, i see you.
Was tempted to put this on the last post ranting about dating sims, but those were more general and these are more specific to me.
I hate how many visual novels/relationship games have sex/implied sex/kissing/accepting a confession integral to the good end, even when romantic love isn’t integral to the plot. It opens it up to the people only interested in one/a few/no love interests. As an Aro/Ace, I sometimes want a story driven game/visual novel focused on building relationships and character study *without* having to use the “make an oc and rp your ass off” method. As much as I don’t want queer routes to be relegated to implication/friendship, I also don’t want all het routes to be locked behind romance. Playing romance games for the plot gets really tiring after the billionth time pretending you want to kiss the love interest so you can see the end of their arc.
It sucks that alloromantics (and to a lesser extent, allosexuals) have the monopoly on intimate stories. Even saying I’m aromantic but a fan of any number of otome franchises makes people doubt either my status as a fan or (more commonly) my status as aromantic. I try not to mention it because it’s awkward to explain how in the world a romance game is appealing to an aromantic. It’s become a meme when people say they’re playing a romance game “for the plot” but some of us genuinely are. I wish I could just say “these are for another target demographic” and play something else, but there aren’t really many games with the same appeals but no romance.
I know some people are gonna think “why are you complaining that dating sims have dating” but that isn’t the issue I’m having here. Asking devs to just make games marketed solely at Aros is obviously unrealistic, we’re a tiny market that won’t even all be interested. But is it always that hard to give a little bit of optional changed dialogue that lets us have the same experience minus the romance? Again, romance has an unfair monopoly on stories and games about intimacy and relationships. I have to complain about dating sims because dating sims are the closest thing to the genre I want to play. It isn’t fair (and is indeed quite limiting to the art form) to insist that aromantic people aren’t allowed to want representation in the media we consume just because there’s no precedent for representation.
Happy Disability Pride and awareness month! Let's talk about Epilepsy!
Hi there! I got tired of seeing my condition (that impacts my literal every day life) being left out or forgotten about during discussions about disabilities, so I made my own post about it! Let's go!
First Off! What the heck is epilepsy? Epilepsy is the fourth most common neurological disorder in the world, and it's a chronic medical condition. Epilepsy is a brain disorder that causes recurring, frequent, triggered, and unprovoked seizures to occur.
The official Epilepsy Foundation describes seizures as follows: "Seizures are sudden surges of abnormal and excessive electrical activity in your brain, and can affect how you appear or act. Where and how the seizure presents itself can have profound effects...Seizures involve sudden, temporary, bursts of electrical activity in the brain that change or disrupt the way messages are sent between brain cells. These electrical bursts can cause involuntary changes in body movement or function, sensation, behavior or awareness." (Source link)
Sounds like a lot of fun right? This is our life. Even with medication, we can be VERY limited to what can be safe for us. Seizure medications are NOT a cure, they only exist (at least as of now) as a tool to help have your seizures less often, or be triggered less intensely. Even on medication, seizures can still happen.
If you have epilepsy as a child like I did, it impacts your entire growing and developing experience. I spent MANY times as a child in and out of hospitals, neurologist and specialist offices, an getting so many EEG tests done. The pain of scrubbing the glue out of your hair for DAYS is horrible.
At a young age my seizures were so frequent and serious, it impacted my brain's ability to retain information. I had to re-learn the names of things at age 8 and 9. I had to re-learn HOW TO READ at age 10. I had to be home schooled because the public school system of my state at the time refused to work with me. I have VERY distinct and vivid memories of crying over my little baby ABC's book that I needed as a 4th and 5th grader. I knew I should've known this by this age. I knew that at one point I already did, and it was TAKEN FROM ME.
As an adult, I'M NOT ALLOWED TO DRIVE A CAR. And I can NEVER go to see a movie in theaters or go to see concerts or live music. There are entire TV shows I don't get to see. I can't go to clubs, arcades, dances, or raves. I miss out on A LOT of fun things. I always do, and I'm WELL AWARE of the fun I'm missing out on. The social, casual, and fun life experiences I'll never get to have. That WE'LL never get to have. And oh yeah! Seizures can KILL SOME OF US. Yep.
And the list goes on, and every person with epilepsy experiences it differently. There are multiple different types of seizures you can have, they're NOT always convulsing on the floor. For example, I have complex-partial-myoclonic-seizures. Meaning my muscles DO twitch when I have seizures, but I'm not always completely unconscious and sometimes I'm even able to stay sitting up. However, I'm still very "off" and can't focus or remember much for a good while after the fact. I can't talk or communicate during one, even with my slight bit of consciousness.
My experiences are not universal, I just wanted to talk about it and bring it up. It helps to talk about it even a little bit.
Here's more about different kinds of seizures.
Here's more about common seizure triggers.
Here's more about CORRECT seizure first aid.
And here's more general information/resources.
Please stop leaving us out of disability awareness. Please stop ignoring us or saying we're "not really disabled" or anything else like that. Please. Why does it always feel like the only people who care about epilepsy, are people WITH epilepsy? We're so tired of being ignored by others who don't have our condition.
If you're an epileptic person reading this, I see you. I love you. You're so strong, we all are. I believe in you, I believe in us. We're so much stronger than we get credit for, and it's going to be ok. Your anger and frustration are valid. Your emotions and struggles are real. You're valid, and I see you. Hang in there, we got this.
